I am walking for my son, Patton. Our story began at about the age of 3 weeks. Patton was diagnosed through newborn screening for cystic fibrosis. Through one little phone call from our pediatrican our lives changed forever. After a weekend of full of anxiety. We were introduced and formally diagnosed by our amazing care tream. Our Care Team at Virginia Commonwealth University has staff members that are supported by the CFF.
During Patton's first year of life, we had alot of scary days along with really good days. All while we were settling into the diagnnosis. There was not one day that I ever felt like I was in this battle alone. Patton has alot of challenges that are lying ahead for him. But with new medications coming down the pipeline. I am sure that he will be able to breathe a little easier. Did you know that medical research for a cure for CF are not federally funded. We as a family rely on fundrasiers like Great Strides to be able to provide the CFF with funding for that research. They are so very close to be able to find a functioning cure for Patton's CF mutations.
Will you please consider donating to our cause?