For
For the past 24 years we have written to inform and engage you in our efforts to end Cystic Fibrosis (CF) and to find a path forward for our daughter Ella, and all of those battling this disease. Each year you have inspired us with your generosity, you have held us in your prayers, and you have given us so very much for which to be grateful. This journey has forever changed how we view the world and filled us with such a deep sense of appreciation.
Ella continues to thrive in more ways than we could have dreamed possible. She is now living in Colorado pursuing her passion for museum work and has started a new job at the Denver Museum of Nature and Science. She has transitioned to a new adult CF clinic, loves her new health care providers and her lung function today is better than it has been in over 15 years. This is a direct result of the CF treatment advancements that have been made in her lifetime. We hope that you will celebrate with us knowing that you have been a part of this story, of her story and of so many others that are now benefiting from these life changing therapies.
We will continue to support the mission of the Cystic Fibrosis Foundation (CFF) as they break down the remaining barriers to a world without CF and bring hope to those who have not been able to benefit from the newest therapies.
Whether you have a connection with Ella, our family or someone else affected by this disease, whether you are new or old to this cause, or whether you can support us this year, please know that you ARE an important part of a community that is transforming lives every day. Your prayers, support and love are deeply appreciated.
If you would like to donate to this year’s campaign, you may simply hit donate here. You may also send us your tax deductible check payable to the Cystic Fibrosis Foundation (see mailing address below). Please know that your support in any amount is greatly appreciated.
With Love, The Thomas family
Ella K Team
2422 Robert E. Lee Road
Powhatan, VA 23139
(804) 378-3748
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.