About Me
Hi, my name is Faith Miller! I was diagnosed with cystic fibrosis when I was 9 years old and am now the ripe age of 28!
Since my diagnosis, I have been hospitalized twelve times, been on home IVs twice, and have had multiple surgeries and procedures. My lung capacity baseline used to be around 45% but for about a year and a half, it has dipped down to the high 30s, which has definitely made life a bit more challenging.
While CF has limited me in many ways, I have still found a way to thrive! I work full-time at Liberty University, my alma mater, in the Accounting department which is funny because I have an arts degree. When not at work, I spend my time reading, singing, playing piano, and cross-stitching while watching Netflix. I also write stories and then turn some of those stories into full-cast audiobooks with music and sound effects. It's a ton of work, but I really enjoy the process and I have gotten the chance to work with some amazing voice actors from all over the world. You can see my work at "Fanfiction Audio Dramas" on Youtube.
In 2021, I was able to get back onto the stage for the first time in seven years. I auditioned for a local community theater's production of The Lion, the Witch, and the Wardrobe, and to my delight, I was cast as Mrs. Beaver! I ended up acting in and working on four more shows over the next year with the company, and then in July of 2022, I auditioned for a different theater's production of The Mousetrap where I was cast in the leading role of Mollie Ralston. While it was definitely a challenge and I had to keep an inhaler backstage to keep up with the physical demands of the role, it was an amazing moment for me to finally be the lead in a show in spite of everything I deal with when it comes to living with CF.
I haven't been in any shows since then thanks to my lung function decline, but I've still done so many amazing things, like attending comic-cons, participating in Rugged Maniac which is a 5k mud run obstacle course, and going indoor skydiving!
In December of 2019, I started the incredible new medication, Trikafta. Unfortunately, only a week later, I began to experience a severe allergic reaction and was forced to stop. It was heartbreaking for me and my family, especially because in that week, I had felt a huge difference, but I know that this is not the end. We do not stop until we have a cure for EVERYONE.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.