Addison’s Story
Addison was diagnosed with CF in Italy at only 4 months old. She went through a week of hell in order to figure out the diagnosis. She luckily does not have a strand of the mutation that is severe so, thankfully, she seems like a typical child her age. Behind the scenes however, her life does look a little different. She does a daily chest vibrating treatment as well as medications both in the morning and at night. If she were to get sick, those treatments increase as well as adding other treatments. We realize this is nothing compared to the routines and lifestyles of those severely affected by the disease. We thank God every day that she is only barely touched by this incurable disease.
Join us by walking for a cure. All of the support is greatly appreciated, regardless of the form it comes in. Our little girl has the sweetest soul and we could never imagine our life without her! All that know her have the same view of her she is truly a Once in a Lifetime girl
The Great Strides Story
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.