April 14th, 2016 our little angel was born at 10:30 in the morning. After having a perfect pregnancy, and a 30-minute delivery, we were all blessed with a 6 pounds 10 ounces bundle of perfection. Layla was rushed into surgery for a bowel blockage with a great surgical team at CHKD. Over a week of healing from the surgery, and multiple tests Layla Mckenna Beecham was diagnosed with Cystic Fibrosis on April 25th, 2016. A disease that will affect her for the rest of her life. Layla spent a week with no food, and two weeks in the CHKD NICU before we were able to bring her home with us. We are happy to say that Layla is now 6 years old and is happier and healthier than ever, with everyone's constant support we are keeping it that way!
Layla is your average fun and SASSY 6-year-old little girl. She loves being outside, going to school, going to the gym, doing gymnastics... and will watch anything relating to Crossfit all night! She is so smart and a very strong fighter.
"She looks so healthy" is a statement we hear almost daily. She is. We have been blessed with 6 years of good health from this strong warrior. However, good health does not come without hard work and dedication from ourselves, Layla, and our wonderful support team. Layla see's 4 different specialist doctors every other month. She underoes multiple xrays, ultrasounds, blook work and throat swabs monthly. For activities we do as a family, we go through SO MUCH STRESS avoiding smokers, coughers, and wiping things down. Layla's daily routine consists of a least 60 minutes of airway treatment using her Hillrom vest, takes over 30 pills a day, (not including her allergy meds, digestive medicine or multivitamin supplements), high fat/protein calorie, yet healthy meals, huff coughs, albuterol treatments, and inhaled steroids.
As of May 5, 2019 Layla, also takes Orkambi twice a day. A year ago, we were over the moon about this opportunity for our girl. Orkambi is a vertex drug that improves lung function and has significantly reduced the rate of pulmonary exacerbations, this drug targets the underlying cause of CF.
And here we are in 2022… and 6 months in of taking Trikafta! Not only does this Vertex drug open up these treatments to other mutations, it also has already improved so many lung functions in the cf community. When Layla was diagnosed, our doctors spoke about this drug with such high hopes. I never ever imagined we would see it in our lifetime... three years pass, and we are on the edge of our seats for Layla to reach the age limit!!!
And this folks, is WHY WE FUNDRAISE!!! All of your generous donations and participation is being illustrated by all the advancements made, even just in the last three years. We never wish to post our daily routine and stories for anyone's sympathy, because our girl is living her best life. The reason we post this is to spread awareness and to make strides to hopefully curing this awful disease. We live every single day thankful for our tomorrows that are made possible because of the amazing support system we have!
Erin Beecham
Event: Hampton Roads
| Team: Layla's Tomorrow
Erin's Fundraising Goal: $300.00
| Amount Raised: $100.00
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.