It is good to be back on track for an in person fundraiser. 2021 and 2022 are going well and God continues to bless us. Ella began Trikafta in June of 2021 and was able to participate in a research study involving MRI to study her lungs before, after at 6 mos of taking Trikafta and will again in 12 mos. We are fast approaching that year mark and we are amazed at the differences it has made in her lung function and imaging. She has became involved in dirt bike racing and continues to enjoy basketball and camping with family and friends.
Karlie continues to thrive in life as she is becoming an adult. She has finished high school basketball and looking forward to starting her a new job and community college for Radiology in the fall. She says if there is one thing she would want people to know is how important exercise is for your lungs and that Trikafta has made a big difference in her life. Her lung function remains at 118%, better than some collegiate swimmers we are told. Ella's lung function continues to climb in the upper 90%. These numbers are fantastic for CF. We would not be here if it was not for fundraising and having new meds like Trikafta. We will continue to work to raise money for others with CF to have the same outcomes and successes. Working till CF stands for Cure Found
"I can do all things thru Christ, who strengthens me" Philippians 4:12
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.