For those who do not know, CF is a chronic, progressive disease that impacts the lungs, pancreas, and other organs. I was diagnosed with CF at 5 years old, and have been living and evolving with the challenges of this disease ever since. As a kid, I was told making it through high school was not a guarantee. What a thing to hear as a kid.
Nevertheless, I have lived a very blessed and healthy life for a person with CF (despite having the most severe mutation of this disease). Through the medical advancements and rigorous adherence to required treatments, I am turning 28 in May. That same month, my wife and I will celebrate our 1-year wedding anniversary. And we are buying our first home later this year. Lots of celebration all around!
While my story is one of hope for those with CF, it is not everybody's story. I have seen friends and family members pass away from CF, many of whom were far younger than I am now. Until those stories are only those of the past, we must press on and make further advancements for those with CF.
As a result of the fundraising the Cystic Fibrosis Foundation does, great strides have been made. For example, I recently began taking Trikafta, which is a life-changing medication for those with my mutation. I can personally attest to its benefits - as I can regularly breathe through my nostrils again. (Who knew I'd experience that after all those years!) Nevertheless, Trikafta is not a cure for CF. Many with CF, and those with other mutations, still fight the fight day in and day out to live and breathe.
I hope you will join me, my family, and friends in donating to help advance the Cystic Fibrosis Foundation's central goal - making CF stand for "Cure Found."
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.