This is Ivy. She was diagnosed with Cystic Fibrosis at just six weeks old. As you can imagine, the scary reality of her diagnosis once left us feeling uncertain about the kind of future she would have. Cystic Fibrosis is a rare genetic disease that affects the lungs, pancreas, and other organs. Part of Ivy’s daily routine to combat this chronic illness involves breathing treatments with the use of a nebulizer two times a day, and her “shaky” vest treatments which, used as a preventative, helps to loosen any mucus from the lungs that might otherwise create bacterial infection. Ivy also takes enzymes with applesauce before each and every meal to help her pancreas absorb the necessary fats and proteins needed for growth. At just three weeks old Ivy was able to eat from a spoon! It was amazing! Her resilience with this disease has absolutely amazed us. She is a fighter and we are so proud of her. We are asking that you join us on Saturday, September 16th, 2023 as we stride to knock out CF. Through successful clinical research and many medical advancements since her birth, people like Ivy, who are living with CF are hopeful that a cure isn’t too far off, and that has certainly been our continued prayer.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.