How do we begin to explain the importance of funding the Cystic Fibrosis Foundation?
Our son was diagnosed with CF at 2 weeks old. He is now 8 years old and healthy! However, his health would not be possible without the advocacy and advancement of treatments by the Cystic Fibrosis Foundation. The medicine he takes, the treatments he undergoes on a daily basis, and the outstanding care of his CF team are all available to him because of the Cystic Fibrosis Foundation’s determination to make each CFer’s quality of life better.
Our son’s fight with this disease is not over. He will face challenges as he gets older, and thankfully, there is an organization that will not stop until a CURE is found! ***This year Riley has been able to take advantage of Trikafta. He is doing really well with this new drug therapy!
This is why we support the Cystic Fibrosis Foundation and why we are attempting to continue funding the organization that will allow our son to continue to grow and prosper.
We invite you to join us at the Great Strides walk on May 13th. And, please, consider making a donation to this life changing organization. Every dollar matters.
Thank You,
Riley’s Rebels
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.