Thank you for stopping by Cameron's Crew & everyone returning to the Crew this year!
Cameron has been on this journey for three years now. What a whirlwind it's been! We have watched our perfect baby be diagnosed with this horrendous disease. Now we have watched him grow into a brave and strong toddler. We have held him down for many tests and procedures. We have seen him have his first true decline and be admitted for a bowel obstruction directly related to his CF. But through these dark times we have been touched by so much hope and made connections with others in the CF community.
Today we are so thankful for Cameron's health! And that is due to the fantastic job that the Cystic Fibrosis Foundation does. Because of their research, fundraising and perseverance there is SO much to look forward to in the CF community. In 2019 the first ever triple modulator drug, Trikafta, was approved by the FDA. It is currently approved for those 6 and older with specific gene requirements (about 90% of the CF population once it works its way down in age through clinical trials). This was made possible because of supporters like you. But.. this is NOT a cure. Until studies prove otherwise, Cameron will still be expected to take his 30+ digestive enzymes a day, albuterol, hypertonic saline via nebulizer, antacid, fat soluble vitamins, Pulmozyme, Orkambi and his Vest.
We hope you will join Cameron's Crew to fundraise with us!
An astonishing .91 cents of every dollar donated goes directly to research. Thank you for your support!
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.