Holly has been living with Cystic Fibrosis for her entire life as "CF" is a genetic and chronic disease. I was diagnosed as an infant and started noticing serious progression of my illness in middle school. Much of CF can be a silent battle because it is considered an invisible illness. Most of my time spent battling my illness was at home before or after school and during times I was in the hospital throughout my school years. A support system is crucial when living with an illness like Cystic Fibrosis. I have been extremely fortunate in having friends who have supported me through the many ups and downs of life with a chronic, progressive disease. Jordan and Kayla have walked with me before, been with me in the hospital, by my side during sleepovers when my cough was relentless all night. As I began college, my battle with CF reached a turning point where my hosptilizations increased in frequency and the chronic symptoms I experienced day to day led me to question quitting school. Right around that time where I wasn't sure if I could maintain any sort of normalcy any longer, I began in a clincal trial that has tremendously restored my health. I completed my degree and now work in Clinical Research to help others. Research is critical for the lives of people like myself and has far more impact than you can directly see when a donation is made. Years of research led us to this point and led me to having my life back. All donations are appreciated more than I can express becuase I know first hand how truly impactful they are and I am eternally grateful for the support of my team and all well wishes as we stride this year for a cure. There are still many others with CF that have a mutation which does not respond to the drug I am taking. There are still many others we continue to fight for in the CF community.
Info from the CF foundation:
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
From our team page, you can support our team in this walk as well as everyone living with Cystic Fibrosis by making a donation to help us meet our goal.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.