We are excited to again be able to raise money for the Cystic Fibrosis Foundation in hopes of finding a cure and even more excited to be back in person this year! In just the past 13 years we have seen firsthand, how the research is paying off and allowing those who live with Cystic Fibrosis to have healthier lives. Our theme this year is "THE STRONG NEVER QUIT." Please don't stop supporting us now. Money raised from events like Great Strides allows the foundation to fund drug research. They continue to have new medicines come down the pipeline. We owe a big “thank you” to everyone who supports us each year through t-shirt sales, on-line donations, and coming to the walk. We cannot thank you enough!!! Please don’t stop now... we need to continue our fight for a cure. For those of you who are reading our story for the first time. I want to tell you more about what Cystic Fibrosis (or CF) is and what it means to my family. Thirteen years ago our two-week old son, Hudson, was diagnosed with CF. At the time, it seemed like a nightmare. Here was our first-born child who appeared to be perfect. It was very heartbreaking to know that there was so much we couldn't see and understand then about what was happening on the inside of his little body. So, you may be wondering what exactly is Cystic Fibrosis? CF is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients. So in the coming weeks after Hudson's diagnosis our lives were turned upside down. We had countless doctors’ visits to learn how we would care for Hudson in order to provide the healthiest life possible. For us to do this, Hudson has had countless surgeries, hospital stays, and has a daily routine which involves chest therapy (a minimum of 2 times daily), 4 breathing treatments, and he consumed a minimum of 46 pills daily. So, when I hear people say "he looks so healthy" I take that as a compliment for all the hard work that both he and everyone in my family puts into keeping him this way; however, I don't want you to be deceived. This disease is REAL. Just because someone "looks" healthy doesn't mean they are. I have hugged and cried along with another CF mom who was burying her daughter. This is the same family who also walked year after year to find a cure. So, I can't give up. This isn't just my son we are fighting for, there are 30,000 people who live with this disease. Please join us as we raise money for the CF Foundation by donating or through the purchase of a "Team Hudson" t-shirt. if you would like to fundraise along with us by joining Team Hudson, you will be able to share Hudson's story and raise awareness to those around you or if you would like to make a donation please click on the link below. Last and most importantly, I ask that you keep Hudson and our family in your prayers. As you know, dealing with an ongoing illness like this takes its toll on everyone involved. It isn't always easy but giving up is not an option. Thank you for your time and your consideration.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.