Well, here I am again asking you guys for an annual donation to the Cystic Fibrosis Foundation. And this is why …
I was pretty ignorant about Cystic Fibrosis until my nephew’s son, Cameron, was diagnosed with the disease a few years ago at the age of two weeks old. Since then, he has come such a long way. He loves to swim, ride his bike and play with trucks. Typical little boy stuff. But his life still involves a lot of trials that most children don’t experience.
Cystic Fibrosis is an inherited disease that primarily affects the lungs and the digestive system. Neither my nephew nor his wife had any clue that they carried the gene for this disease until Cameron was born. Every day, Cameron has chest physiotherapy twice a day. This includes albuterol, a nebulizer treatment and twenty minutes in his special vest which is designed to shake the mucus free from his lungs. Because his digestive system is unable to metabolize fat, he is also unable to digest fat soluble vitamins. This means he must take special vitamins that his body can metabolize in addition to 35 digestive enzymes! He is also on a medicine that works to heal his condition at the cellular level. It would be a lot to deal with for an adult and even more for a little guy! And Cameron isn’t alone, over 35,000 Americans have CF. Unfortunately, in typical cases, those suffering with CF will not enjoy the life expectancy that most of us are afforded.
The Cystic Fibrosis Foundation is working to find a cure and provides much needed help and support for families affected by the disease. Our family has first-hand experience with the good they do and that’s why we work to raise money for CFF every year.
If you can, please donate to help Cameron and others like him strive for a full life and all the things that most of us take for granted.
Thanks so Much!