For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease. One of those people is Sienna.
At eight years old, Sienna has spent roughly 3,280 HOURS of her life connected to tubes for "shakies"/vest therapy and a nebulizer for breathing treatments. At eight years old, Sienna has MISSED more than 196,800 minutes playing with friends/her siblings, and doing things she loves because she's sitting for treatments that are hopefully slowing her disease progression. Time is fleeting and life is short. She, and all others living with CF, deserve that time back.
I walk for her. Will you join me and support my Great Strides fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community. Because of YOU, Sienna is now on a life changing medicine called Trikafta. Because you YOU, we are close to a cure.
No action is too small. Talking about CF/sharing her story = Awareness = Donations = Research = New medicines and hopefully one day, a cure.
Please support Sienna. And Palmer. And Grahym. And Jude. And Ava. And Heidi. And Harrison. And all those in our community fighting this battle.
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.