We are incredibly grateful for your support of the Cystic Fibrosis Foundation (CFF) and directly to the support our son, Nicholas, and the entire family. The approval of Trikafta in 2019 has transformed our lives. That miraculous drug helped Nick and Kendra have Roxie, 7/7/2021 and then just now, little Eliza, 12/6/2023! Two beautiful granddaughters thanks to the combo of faith and science!
Not all people who have CF have benefited so dramatically from the new medicines. But there are ten approved therapies that have added decades of life for people with CF. Challenges are now being faced with new obstacles for, get this, the “aging” CF population! When Nick was born, we weren’t sure he’d see elementary school! My, how thankful we are of the passage of these times.
Nick is doing well with the advertising agency, McKinney. He’s worked with Zooey Deschanel, Keegan-Michael Key, and Popeye’s Chicken on advertising shoots lately. Kendra is on a leave of absence from Duke nursing until April, when Nick will take a few months leave.
While Nick and family live in Durham, Joseph and his wife Abbi leave about 25 minutes away. They are on a river, flyfishing as often as possible. Joe is still selling good bugs to eat bad bugs, and Abbi does beverage industry marketing.
In April, French speaking friends and I went to southern France for 2 weeks; beyond charming. In June, I went to Newfoundland for a reunion with the folks in my French immersion class of Nova Scotia in 2022. During April, Tim took his red Caddy down Route 66; check that off the bucket list.
Tim and I are finally back in our “restored” house after the horrific pipe burst of Dec. 2022. Over $315,000 in damages. Losing photos and memorabilia was difficult, but it is just stuff. No one was hurt. Moral of the story: Turn off your water when you leave.
We will continue to fundraise for CF until it is actually cured. Your donations help fund more than 50 research programs with big time biotech companies, applying the world’s most innovative science. Early phase clinical trials for genetic based therapies are underway, including promising messenger RNA therapies. Did you sleep through your genetics class?
Thank you in advance for any amount of donation. All are genuinely appreciated. If you are inclined to write a check, send it to us at 1087 Walnut Ridge Road, Brevard, NC 28712
Health and happiness to you and your families,
Barbara, Tim, Nick, Kendra, Roxie, Eliza, Joseph, Abbi
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.