Jillian Koroskenyi

You probably already know that Michael and I have been blessed with two awesome boys with Cystic Fibrosis.  Zackery is now 17 and Christian is 15!!  They have been on Trikafta for about maybe 4 years now.  They have been doing fairly well on it.  Some small issues with liver functions finally leveled out.  Zackery had covid in September 2022 and needed to be hospitalized for a tune up but overall he did fairly well with it.  Before that admission, neither one of the boys had been hospitalized since August 2020!!  Which is incredible for them!!  They were averaging being in the hospital at least once or twice a year before Trikafta and maybe more. Christian has maintained a steady high lung function and weight gain.  Zackery is still unfortunately not able to process the lung function correctly with his Autism, so we don't really have average numbers for him. But he is still practicing in the clinic.    There are approximately 30,000 Americans living with Cystic fibrosis along with Zackery and Christian.   They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?

Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.  

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!