There are approximately 30,000 Americans living with cystic fibrosis.
My granddaughter, Ivy Efird, is one of them. Just after she was born, we know something wasn't right. She was losing weight, but there was not an explanation for it. At 6 weeks old, she was diagnosed with CF. I had heard of CF, but knew very little about it. Like Ivy, there are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for Ivy, and I walk for them.
While there is no cure yet for cystic fibrosis, people with CF are living longer, healthier lives than ever before. In fact, babies born with CF today are expected to live into their mid-40s and beyond. Life expectancy has improved so dramatically that there are now more adults with cystic fibrosis than children.
This progress resulted from many medical advances in CF treatment and advocacy by patient groups such as the Cystic Fibrosis Foundation. While much progress has been made, there's still much work to do. I would be honored to have you join me in my fundraising efforts in supporting this very worthwhile cause.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.