This is our seoncd walk with Great Strides! We are walking for Kenna, our daughter, granddaughter and great-granddaughter.
Our daughter, Kenna, was born in May of 2017. It was a great birth and she was happy and healthy when she entered this world! We did the normal routine heel prick for newborns and then went home to start our lives as a family of four! A few days later I received a call from our pediatrician to set up an an appointment to talk about her blood work. This is when we found out about Cystic Fibrosis and scratched the surface as to what it was and what Kenna's life would be with it. From there, we saw several doctors and have been to several appointments to talk mainly about her lungs and about her weight gain. She is on several medicines to help her gain weight and has daily treatments to help keep her lungs healthy and not too mucusy.
Kenna is doing great so far. She is always happy and always has a smile on her face (except when she is hungry or has to do a nebulizer treatment). Our clinic has been super helpful in helping us understand what CF is and how we need to handle everything we do for our daughter. We are so excited when we learn about all the advancements that have been made in medicines to help treat CF and we are very hopeful for a cure very soon!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.