Thank you for stopping by Cameron's Crew! We hope you join our team to fight cystic fibrosis. Thank you to all those who are returning to The Crew this year!
Cameron has been on this journey for one whole year. What a whirlwind year it's been! We have watched our seemingly perfect baby diagnosed with this horrendous disease. We have held him down for many tests and procedures. We have seen him have his first true decline and be admitted for a bowel obstruction directly related to his CF. But through these dark times we have been touched by so much hope and made connections with others in the CF community.
Today we are so thankful for Cameron's health! And that is due to the fantastic job that the Cystic Fibrosis Foundation does. Because of their research, fundraising and perseverance there is SO much to look forward to in the CF community. This year the first ever triple modulator drug, Trikafta, was approved by the FDA for those 12 and older with at least 1 copy of the DelF508 gene mutation (about 90% of the CF population once it works its way down in age through clinical trials). This was made possible because of supporters like you. But.. this is NOT a cure. Until studies prove otherwise, Cameron will still be expected to take his 20+ digestive enzymes a day, albuterol, hypertonic saline via nebulizer, antacid, fat soluble vitamins and his Vest.
We hope you will join Cameron's Crew to fundraise and walk with us on May 16th! Thank you for your continued support!
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.