How do we begin to explain the importance of funding the Cystic Fibrosis Foundation?
As most of you know, Leanna’s sister has Cystic Fibrosis. She did not find out she had the disease until she was in her 20’s. She is currently 37 years old and in Hospice care. This disease can be brutal and unpredictable.
Our son was diagnosed with CF at 2 weeks old. He is now 6 years old and healthy! However, his health would not be possible without the advocacy and advancement of treatments by the Cystic Fibrosis Foundation. The medicine he takes, the treatments he undergoes on a daily basis, and the outstanding care of his CF team are all available to him because of the Cystic Fibrosis Foundation’s determination to make each CFer’s quality of life better.
Our son’s fight with this disease is not over. He will face challenges as he gets older, and thankfully, there is an organization that will not stop until a CURE is found! ***Just in the past month, the CFF has successfully put another drug therapy before the FDA. It was approved! This drug therapy has shown such promising data for those with CF.
This is why we support the Cystic Fibrosis Foundation and why we are attempting to continue funding the organization that will allow our son to grow and prosper.
We invite you to join us at the Great Strides walk on May 1st at 5:30pm. And, please, consider making a donation to this life changing organization. Every dollar matters.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.