As a pediatric nurse, I have the privilege to take care of young people with cystic fibrosis on a weekly basis. Because of the nature of their disease, and the rigorous courses of their treatment, these children are often with us for weeks and weeks at a time. We have some children that are fortunate, that we see only every six months to a year or so for a general (what we like to call) “CF Tune Up”. We have some children that are with us five and six times a year for sometimes a month or more at a time. Either way, you can imagine that we get to know these kids pretty well. :) We know their parents, their siblings, their families. Their stories. There are nurses on the floor that have worked there for ten years or more and have watched some of these children, who are now in their teens, grow up. Every nurse on the floor has a story about at least one of them. We probably each have our “favorites”. When I started working at the children’s hospital in 2012, it didn’t take long for these patients to become some of my favorites to take care of. They have an undeniable spirit.
The regimen that cystic fibrosis patients must do on a daily basis is intense. It involves inhaled medications in the form of breathing treatments, chest PT for up to an hour a day, and so many pills and vitamins. All of these things take a lot of time.
Needless to say, it’s hard sometimes to just “be a kid”, when you have CF.
Knowing these kids, loving these kids and their families…. this is why I walk for CF in the Great Strides Event. The Cystic Fibrosis Foundation is a leader in medical research, and with their help – we can find a cure for this disease in our lifetime. Last year they raised over 40 million dollars for the cause! And each year we get that one step closer to a cure.
If you are touched, like I am, by these kids and their stories – please consider donating to my Great Strides Campaign!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.