Penny is a happy, feisty, fun, loving, headstrong almost 6 year old. She is also one of approxamately 30,000 people in the US with Cystic Fibrosis, a life-limiting genetic disease that mainly effects the respiratory and digestive systems
Because of a drug that was partly funded by your donations, Penny was recently able to stop 10 of her pills everyday! She has regained her pancreatic function which before the new drugs was unheard of! She also does 2-30 minute respiratory treatments a day while well and 4 when she is ill. A common cold usually ends in a lung infection requiring antibiotics. Luckily, she's been able to stay out of the hospital since she was 4 months old!
The CFF is largely responsible for the current treatments available for patients with CF. $0.90 of every $1 donated goes straight to research!
Penny and those others with CF go through more than most can even imagine and we pray daily for a cure.
By becoming a member of our team and/or making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.