It’s that time of year again!
Every year our family participates in a fundraiser for the Cystic Fibrosis Foundation. Our hope is to raise awareness and funds to help aide in the research and medical advances for those who have cystic fibrosis, like our son. Everett was diagnosed with Cystic Fibrosis at 3 weeks old. We are so immensely grateful for modern medicine and research that has allowed our Everett to live such a healthy life thus far. Just this last year he has been blessed to begin Trikafta, which is a drug that greatly reduces the effects of CF. This treatment is the result of years of research that has been funded by the CF Foundation.
Please help us in reaching our goal!
(Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.)
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.