Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal!
My Great Strides Story
I picked this team name because in our family we have multiple people with cystic fibrosis.
Brianne- my sister- age 32 - Recently married, going on her 10th year as a special educator, lover of New Girl, The Office and Hoarders. She loves to shoot, travel and spend time with family and friends. Thanks to Trikafta she is several years free of IV antibiotics!
Cortney- ME- age 29 - I’ve been married to my sweetheart for 6.5 years. We have 3 kids together, 2.5 year old twin girls and an almost 1 year old baby boy. I was a teacher for 5 years but I’m now a stay at home mom. Having 3 kids has been a bit rough for my health, but they are my motivation to keep working hard and the reason I’m fundraising for a cure.
Sam- brother- age 27 - The most epic gamer I know. He’s good at everything he does. His vocabulary blows my mind and his ability to quote YouTube videos in every day conversation will always keep you on your toes. He’s a devoted friend and growing into the role of being the fun uncle. Trikafta has been a life saver for him. He barely needs to do treatments anymore and was able to gain weight really easily for the first time in his life.
Molly- cousin- age 8- The cutest and sweetest CF fighter there is. CF has never slowed her down. She is always out playing and exploring with her siblings and cousins. Camping, hiking, jumping, she does it all!
Len- uncle- died at 2 years old- When Len was born there wasn’t much knowledge about CF and no medications to really help. A diagnosis of cystic fibrosis was a death sentence.
When my siblings and I were born CF was considered a terminal disease. As we got older and research was furthered, more medicines came out and it was more considered a chronic disease. And now, when Molly was born, the life expectancy is up into the 50s-70s. The more money that is raised, the more research can be furthered. The more research is furthered, the more treatments we are offered. The more treatments we receive the better our quality of life is.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support us!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.