Cystic Fibrosis was not part of our vocabulary at all in 2020 when our daughter was born. After an emergency bowel surgery for meconium ileus, genetic testing, and a sweat test later, our family was completely immersed in a new world full of medications, specialist visits, new vocabulary, and breathing treatments.
Since the beginning, we have been astounded at the great level of care and research available about cystic fibrosis. Not all rare diseases have this level of support. And the reason for that difference lies right here-- without the tireless efforts of the Cystic Fibrosis Foundation and the generous donors that support it, our daughter would not have the amazing level of care she has today. We are so grateful to have this community on our sides to support our daughter.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
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