Tiara is a very spunky 9 year old girl who is doing her best to live a life full of fun despite her CF. She is in 4th grade, loves to play babies, sing, dance , cheer and tease her 3 brothers who love her more than this world. She takes 20 pills a day , spends 1 hour doing breathing treatments and has 2 nebulized meds each day when healthy and even more meds when she is sick. She has a fiesty attitude and doesnt allow Cystic Fibrosis to bring her down. She has a zest for life and loves her family and taking care of her kitten. She loves all animals and ensures they are taken care of at all times. Help us find a cure for CF and prolong her life so she can continue to live life to its fullest. Currently none of the meds on the market treat her mutations so we continue to fight hard each day to find a regimen that will treat hers and all other underlying causes of CF. Thank you for your consideration and helping us to find a cure!!! CF stong!!!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to my Great Strides fundraising campaign today!
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We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.