When Ellie was born she began to show signs that something was wrong withing 24 hours. She was flown to Primary Children's hospital where she underwent exploratory surgerywhere a bowel blockage very common in children with CF was discovered. We were told this most likely meant that she had CF but further testing would need to be done in order to confirm the diagnosis. When it was confirmed our life was flipped upside down. She spent her first month in the NICU where we were taught a brand new way of life. Ellie does multiple breathing treatments a day and takes many medications just to be able to stay healthy. Getting normal sickness for her can mean a trip to the hospital for a 14 day "cleanout" to get her healthy again. She is such a fighter as are all those living with CF! She has an incredible team of doctors who work so hard to make sure she stays as healthy as possible! She handles all of the Dr visitis and procedures like a champ and we couldn't be more proud of her! We love you so much sweet girl and are so proud and amazed at your strength! We have been so blessed to have the incredible medications that have been developed of over the last several years and wouldnt be where we are without the help of an amazing support team and doners like you! Please help us raise money that goes straight to the research and development of life saving medications and treatments for all those fighitng CF!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!