This is Ethan, AKA EZ. Ethan is 7 and full of opinions! His sunny disposition and enthusiasm for every day life make him a joy to be around. Ethan is thriving because of all of the advances in CF care that have taken place over the past few years. He keeps his lungs healthy with daily respiratory therapy and medication, takes enzymes with every meal, and has been successfully using Orkambi for almost 3 years.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!