There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk not only for them, but for myself, and I would love for you to join me in this fight!
I was diagnosed with CF at just two weeks old.
At that time when people were diagnosed with CF they weren't expected to make it to high school. Through years of hard work, dedication, and fundraising the life expectancy for someone with CF is now in the early 40's and new treatment have helped improve qaulity of life for many.
While this is great news, 40 is still so young. We have a long ways to go. There is no cure for this devastating and life-threatening disease. And unfortunately, far too many are still dying much younger than 40.
Just last year I had to have my third sinus surgery. I ended up in the hospital twice within less than three months for CF related exacerbations. That time in the hospital was spent continually hooked up to IV antibiotics, doing respiratory breathing treatments four times per day, resting, and pulmonary rehab for cardio exercise. In the past year I have had to increase the amount of time I spend each day doing nebulized breathing treatments and airway clearance to help keep my lungs clear of mucus. I once again struggle to keep my weight up and have to work hard (and eat a LOT) just to maintain a healthy weight. As a child I had a feeding tube placed in my stomach. I was fed extra calories through that tube while sleeping. I had that tube for nearly 10 years. And while I know that without it I would not have the health I do today, I hope to never have to have another feeding tube placed, but I know it's a possibility.
Just two years ago, I found I could no longer work full-time without it negatively impacting my health. While my work does not define who I am as a person, I truly love being able to work full time in a field where I could help others.
As I get older, my health will only continue to decline, no matter how hard I work to stay healthy. It's just the nature of the disease.
In the past three years I have lost three amazing and wonderful friends to this awful disease. It shook me to the core and affected me in ways I never imagined.
I fight daily for myself, my family, my friends, and in memory of Heather, Kelsi, and Mike. I will NOT give up.
And now I ask for your help and support. With continued support and fundraising efforts amazing strides have been made in the research and treatment of CF and there are many great treatments on the horizon. I hold out hope for not only better treatments but a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
If you are in the SLC area you can join my team and walk with us. You can also elp me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Your support and love is appreciated more than I could ever put into words. THANK YOU.