Our grandchildren, Clare and Elliot, are both now 11½ years old. No longer little children, they are remarkably courageous and beautiful teenagers. They are both continuing to grow into vibrant, healthy, charming and successful young people - full of lfe and all the wonderful things that it has in store for them. They both are positively responding to their therapies and medicines (twice-daily rigorous percussion treatments, 40+ pills and capsules a day, and nightly nutritional food supplements fed through a tube connected to surgically implanted valves into their stomachs). This regimen has resulted in visible prayed-for successes as both are growing stronger at a healthy rate necessary to support their very active lifestyles. These kids are our heroes!
Their respctive parents (Chrysi and Rick Davis in Atlanta and Alta and Mike Hales in Salt Lake) continue to be supreme models of love, diligence and patience in providing all of the physical, emotional and spiritual support that these precious children require every day. Their efforts are inspirational to many, specifically in the Salt Lake and Atlanta communities, and generally throughout the CFF communities nation-wide.
There are approximately 30,000 Americans living with cystic fibrosis, struggling with the nutritional and respiratory challenges that this insidious genetic disease has given them. These victims are moms, dads, husbands, wives, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe and digesty food. We walk for them and hope you will support us in our efforts.
THE BEST NEWS: Real progress has been made and is continuing in the search for a cure. In the 11+ year life spans of Elliot and Clare, the general life expactancy for CF patients has risen mopre that 10 years. The median age of someone afflicted with CF is now over 18, so this is no longer just a children's disease. Over 50% of those currently afflcited are able to take medications that are attacking the basic causes of the cellualr defects. However, the lives of people with CF are still cut far too short. There still is yet no cure for this devastating disease. The specific CF mutation which afflicts Clare and Elliot has not yet been successfully attacked by any medication, but WE HAVE REASON TO SEXPECT A BREAK THROUGH NEXT YEAR. THAT MEANS 2020!
By walking this year, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me in this cause? Please consider supporting us by making a donation to our Great Strides fundraising campaign today!. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible. Thank you.
Rick and Alta Davis