Megan Maurer

My Great Strides Story

Due to my Cystic Fibrosis, I was born premature through an emergency C-section. Right after delivery I was rushed into life-saving bowel surgery.

Over the years, I’ve had countless hospitalizations, doctors appointments, medical procedures, (and due to the way my CF has affected me) painful bowel obstructions.  

In 2020 I started the life-changing medication Trikafta.  While my lungs have greatly improved, this medication wasn’t without side effects.  Even so, I’m lucky to have access to it.  Not everyone qualifies to take Trikafta, and even those who do don’t always tolerate it or have access.  

This is why we need to keep fundraising for research.  To find medication’s everyone is able to take.  Find medication’s more individuals are able to tolerate.  Find medication with less side effects and ultimately find a cure.

Some general information about cystic fibrosis—Nearly 40,000 people in the United States have it.  Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. 

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.