Welcome to our Struttin For Sutton 2023 Team Page!!
Another year, another opportunity for our friends and family to rally together to help make CF stand for CURE FOUND.
It’s hard to believe that this is our 11th year of participating in the Great Strides Walk in honor of our CF warrior. Although our Sutton and this season of life looks a bit different then the first year we walked, our passion and our mission has remained the same. To continue to do everything we can to help add more tomorrows to those living with Cystic Fibrosis.
When we received Sutton’s diagnosis years ago, we often asked “why.” It took us time to understand this new normal and what it would mean for him, for us, and for our future. It hasn’t always been an easy road. CF brings varying challenges that are different for each and every person that it affects; however, these challenges have brought us strength, courage, determination, and HOPE that Sutton will see a day where CF does not have a life expectancy attached to it. As the years have gone by, the purpose for CF being placed in our lives has shown itself. We believe that God places obstacles in people’s paths to give them the opportunity to do amazing things. Our work with the CFF is one of the most rewarding ways we can give back and make a difference in the lives of others. We have formed friendships that will last a lifetime, and we are seeing that the hard work we have put in over the years is WORKING. Although we didn’t envision this as being a part of our lives, it has come with blessings we never could have imagined. Sutton’s CF related disease looks quite different from that of his fellow CF Warriors, and for that we are grateful, but we do not fight for a cure JUST for Sutton. We fight till EVERY person with CF or CF related diseases see that cure. Until It’s Done.
Sutton is now 10 years old!! Sutton continues to be our soft hearted, kind, SMART, and driven kid, who teaches us just as much each day as we teach him. He has adjusted incredibly to life here in Utah. He has taken his rock climbing up a BIG notch (or hold-as we call them) and has worked hard to earn a spot on the Intermediate Climbing Team at The Front Climbing Gym. This year he had a huge accomplishment and qualified for Regionals. We are officially seeing how quickly weekends can fill up with rock climbing competitions, and we love it. He spends 5 hours a week in the climb gym, and the sport has proven to be amazing for his lungs! When he isn’t climbing, he is out skiing mom on the ski slopes, or snuggled up with a book in his hand. It is incredible to see how NOTHING holds this kid back when it comes to crushing ANYTHING he sets his mind to. He makes us so proud.
His CF diagnosis has been increasingly more positive as the years have gone by. He still takes daily inhalers and some medications to keep his allergies and sinuses healthy, but it is a regimen that leaves us feeling blessed when we see what so many fighting this disease endure each day. Our prayer is that he will continue to show how strong and healthy he is! Even more encouraging is that the Cystic Fibrosis Foundation's research and funding has aided in the development of some new medications that are drastically reducing the symptoms of CF. The most recent medication the FDA has approved, Trikafta, treats the underlying cause of CF. It will benefit 90% of people living with this disease. THAT IS POSSIBLE BECAUSE OF FUNDRAISING!! Although it is not a cure YET, it is highly encouraging for us to know that there are some options for treatments that are changing the lives of these warriors. The years have brought PROOF that fundraising WORKS. These developments are a direct result of the funding provided only through donations made to the CFF by generous people just like YOU. Struttin For Sutton continues to be a powerhouse with our fundraising because of the tribe of people who rally behind us. Our large group of supporters are evidence that there are so many kind hearted people helping us fight for a CURE.
We can’t slow the momentum though! We still need your help!
Help us reach our fundraising goal. Your gift goes to life-saving research and medical progress and is 100-percent tax deductible. Every little bit is SO greatly appreciated and so are your prayers...prayers that Sutton continues to be the happy, healthy, smart boy that he is, and that VERY soon (because of your generous help), CF will stand for CURE FOUND for all people in this world fighting this disease!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.