Cystic Fibrosis was not part of our vocabulary at all in 2020 when our daughter was born. After an emergency bowel surgery for meconium ileus, genetic testing, and a sweat test later, our family was completely immersed in a new world full of medications, specialist visits, new vocabulary, and breathing treatments.
Since the beginning, we have been astounded at the great level of care and research available about cystic fibrosis. Not all rare diseases have this level of support. And the reason for that difference lies right here-- without the tireless efforts of the Cystic Fibrosis Foundation and the generous donors that support it, our daughter would not have the amazing level of care she has today. We are so grateful to have this community on our sides to support our daughter.
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.