When I first embarked on my journey working at the Cystic Fibrosis Foundation, I never could have imagined the profound impact it would have on my life. Back then, I didn't know anyone living with CF. But now, I am proud to say that I have embraced and been embraced by this incredible community.
Over the years, I've witnessed remarkable progress in the fight against cystic fibrosis. From groundbreaking research to innovative treatments, the strides we've made have been nothing short of miraculous. Yet, what truly inspires me is the unwavering resilience and spirit of the individuals and families affected by CF.
I've had the privilege of standing alongside these incredible people, listening to their stories, and sharing their joys and sorrows. New medications have made it possible to celebrate milestones like weddings, and watching a father dance with his daughter, a drivers license, restoring a first car, purchasing a car you didn't think you would need, birthdays, and witnessing the simple joys of watching a sunrise or collecting starfish, experiencing a full throated laugh without being racked by coughing.
But amidst the progress, I've also been humbled to hear the worry of people living with cf, parents and grandparents of kids unable to benefit from these medications of the hope that they won't be left behind and that we realize there is still work to be done.
There are approximately 40,000 Americans living with cystic fibrosis, each facing daily struggles just to breathe.
That's why I'm reaching out to you today. I'm participating in Great Strides, a fun, family-friendly event that raises awareness and support for people with CF and their families. By walking today, I'm helping to add tomorrows to the lives of those living with cystic fibrosis.
Real progress has been made, but there is still no cure for this devastating disease, and too many lives are cut short. Your support can make a difference. If you are able, please consider donating to my Great Strides fundraising campaign today.
Thank you, friends, for being the good in the world. Together, we can cure a disease.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.