Wow! I can’t believe it has been an entire year since the last Great Strides fundraiser! Last year I was blown away with how many friends and family, near and far, took the time not only to view Asher’s page and send prayers, but generously donate to this cause that is so very important to us!
For those that are new to this page or were not aware, Asher was born on July 1st, 2017. Six days later, I received a phone call stating that, what we thought to be a beautiful, healthy baby boy was actually not the case. We were told that his newborn screening and further testing revealed that Asher had received 2 genetic mutations, 1 each, from Kevin and I. These mutations further indicated that Asher has Cystic Fibrosis. This news absolutely crushed our world and broke my heart.
Many of you may not know what Cystic Fibrosis is and I don’t blame you for not knowing, because until that day I received that crushing phone call, I had no idea! In short, Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. Not only does Cystic Fibrosis affect the lungs, it can also affect the Pancreas and Liver.
Since birth, Asher has been doing pretty well and is mainly experiencing issues with his pancreas and digestion. We have a daily and vigilant routine that includes Pancreatic enzymes with every feeding (4-5 capsules per meal and 2-4 with snacks), a special vitamin that he takes, 2 additional medications that aid in the absorption of his pancreatic enzymes, an inhaler twice daily, and respiratory therapy (vest) twice daily. I thank God everyday that we haven’t had any hospital stays thus far.
Since last year, Asher has grown tremendously . The doctors say that weight and lung function go hand and hand, so we want our big boy to continue growing at this excellent rate!
There is no cure, as of yet, for Cystic Fibrosis which is why research is so important. Please help us in prolonging our sweet baby Asher's life by donating to Cystic Fibrosis research to find a cure, hopefully someday soon! We love and appreciate all of you!
Great Strides walk supporting Cystic Fibrosis Foundation is on May 2nd, in Memphis, TN. I know many of you won’t be able to make the walk, but any donation small or large is very much appreciated. And if you can’t donate or participate, we appreciate prayers!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.