Team Cecelia

Our grand daughter, Cecelia Jayne, was diagnosed with Cystic Fibrosis at 12 days old. What a shock to our family, we had no idea anyone was a carrier. Our daughter, Kara and her husband George had 3 healthy boys already. I was able to accompany them to their first family meeting at their Cystic Fibrosis care center and learned all about what CF was, how it's treated, what to expect and what life may look like now. It was a lot and after three hours, we were exhausted.

Kara and George worked so hard to keep the kids healthy, but for Cece's first 3 years, she experienced many setbacks. She struggled to get off of her sick plan and had many hospital stays. Since beginning Kalydeco, Cecelia has made great progress. Without the research and development of new medications, like Kalydeco, made possible by the Chstic Fibrosis Foundation, Cecelia may not be where she is today.

Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe. 

With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.  

We walk in Great Strides for them.

Will you join us?

Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.

To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.

By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!