This year's walk is a bit different as we are striding for 3 fighters now! From Baby Bz fight to Salted Miracles. All for the same purpose to raise awareness and money for a cure for Cystic Fibrosis. Paiz was diagnosed August of 2022 after knowing more about CF and all that it entails my suspicion was correct. Har just recently diagnosed on April 18th 2023. Though are girls continue to defy odds we still have a lot to navigate. We are grateful their lungs are strong and healthy but CF doesn't just affect the lungs. It affects all the organs primarily the pancreas. All girls have 2 mutations which means when they get married in the long distant future, if their spouse is a carrier their children will have a 25 percent chance of having CF. Knowing they all have a severe mutation if it is with another their children could have a severe case of CF. This is why we continue to fight for a cure. CF still has no cure and so many are still losing their lives to this awful disease daily. This is a generational curse that we hope and pray ends here. But we will not stop until CF stands for Cure Found. Your donations go to a non profit organization called Cystic Fibrosis Foundation to help research and fight for a cure for our sweet babies. Though there has been a lot of progress with modulators that are helping people it also is affecting others with severe side effects. Not all qualify for this medication or others and not all are benefitting from it. I remember the day we got the call about BJOY and what broke us the most was knowing her life could end at 35 years old. That now has moved up to 55 thanks to all the donations and research that have been made to fight for a cure. Praying we see the day that CF stands for Cure Found. To not see another CF kid struggling and 2 week hospital admissions and then some. I don't get into the severity of this disease because it breaks me. We are blessed our girls have atypical or mild CF and we pray it stops with them. Their kids could become carriers and so on but we are trying to live in the present Knowing God holds the future in his hands. So we keep fighting in prayer. We keep fighting to raise awareness. We keep fighting for a cure.
The best way you can support us is by continuing to pray for our girls and for a cure.
The next way is to join our team and come walk with us in May we would love to have friends and family along side us. I know the girls would love to have y'all as well. You can click in the link and hit join team (under the donate button) if you raise 100$ for our team you get a CF shirt to wear in support of our fighters. You can also donate as little as a $1 and even set your goal to that amount. If you are a friend or family member out of state you can join virtually and I promise it too means the world to us and our girls. Our hope is to have more than just us 5 this year as we walked alone last year we didn't know anyone to join us. I want the girls to see they'll never be alone on this journey.
The last thing is donate if you can financially even if it's a dollar I promise it doesn't go unnoticed. We appreciate every single penny and prayer.
We wouldn't be where we are today if it wasn't for God's grace, favor, and your continual prayers.
Thank you beyond measures!
Cystic Fibrosis picked the wrong family to mess with
#saltedmiracles #Cystersquad #fightinginprayer #conqueringcysticfibrosis #cysters #Harkcomstrong #nooneinthisfamilyfightsalone