What is Cystic Fibrosis? The CF Foundation defines Cystic Fibrosis as a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
Cystic Fibrosis is a life threatening disease that affects every aspect of daily life. Daily breathing treatments, medications, chest percussion therapy, and exercise are just a few things done to keep the lungs of those with CF functioning as well as possible. Not to mention the countless amounts of medication taken to help digest fat in the diet due to pancreatic insufficiency.
The good news is that amazing progress has been made for those who have CF over the last few months. A ground breaking drug called Trikafta was approved by the FDA that allows 90% of people with CF to have a pause button on their disease. When Evelyn was born the life expectancy was in the 30's but it is now 47 and because of Trikafta we are hopeful she will have a full and healthy life. But despite the breakthroughs there is still no cure for this devastating disease and many lives are cut far too short. There's also the 10% of people who live with CF that still don't have groundbreaking drugs like Trikafta to take.
By walking on May 2nd in Knoxville we are helping add tomorrows to the lives of people living with Cystic Fibrosis. Will you join us? Please consider making a dontation to our Great Strides fundraising campaign today! No amount is too small because it all adds up! Your gift will help add tomorrows to the lives of people with Cystic Fibrosis by supporting groundbreaking research and medical progress. Your gift is 100% tax deductible!
Without awareness, there is no funding. Without funding, there is no research. Without research, there is no hope.
We must never lose hope.
Let's make CF stand for Cure Found.