Dear Friends and Family,
This year’s Great Strides celebration will be on May 1, 2022, at the TN Riverpark in Chattanooga. We will join King, Ginger, Alex, and Emma Virginia to celebrate with our Cystic Fibrosis Family in person for the first time in two years.
The enclosed picture of King was taken on June 30th, 2021, shortly after UPS delivered Trikafta to him. This moment was the culmination of our 10-year effort to place a treatment in King’s hands that will sustain him until a cure is found. It was made possible by the Cystic Fibrosis Foundation’s vision and long-term research. Donors such as you made this life-saving technology possible.
King, now 10, bolstered by Trikafta and covid vaccination, returned to his in-person classroom last November. King, very much the extrovert, was thrilled to be back with his friends. King enjoys building Legos, playing computer games, reading, and walking his dachshund Cash.
King’s last pulmonary function test was remarkable. Trikafta has allowed better mucociliary clearance from his lungs, which should prevent future lung infections. King now is untethered; he no longer requires the nightly G-tube feedings that he has endured for most of his life. However, he must take in twice the calories of other children his age with healthy GI systems to maintain the same growth weight. He still is heavily burdened by two daily respiratory treatments and takes roughly 65 pills a day. His alarm is set for 6:00 a.m. each school day to begin the first hour-long respiratory treatment.
The Cystic Fibrosis Foundation (CFF) has been an outstanding steward of research dollars since its formation in 1955. The Foundation’s drug pipeline is robust, attacking cystic fibrosis from every angle. It includes the research and development of drugs to restore CFTR function, mucociliary clearance medications, treatments for inflammation, antibiotics, and nutritional aids. The CFF now is supporting research on gene editing technology, such as the recently discovered CRISPR. This research has the potential to advance our ability to treat and cure CF and other diseases. The CFF continues its focus on the final 10% of CF patients who do not have a corrector. The Foundation is committed to improving the lives of those who suffer from cystic fibrosis while continuing on the path to a cure.
Thank you for your belief in our mission to find a cure for King and all others who fight cystic fibrosis. Please consider joining Team Kenneth King’s Believers by donating to the Cystic Fibrosis Foundation, either by check or online at our link http://fightcf.cff.org/goto/sue-edking. Your gift is 100% tax-deductible; 90% goes to life-saving research. Our personal goal is $10,000. Our family appreciates your prayers and support to sustain King and all others with cystic fibrosis until a cure is found. We are stronger together…until it’s done!
Thank you for your donation.