
Here we go again... Why do I do this fundraising every single year without fail????
In November of 2019, I started the latest drug that came out to treat cystic fibrosis. That was shortly before Covid reared its ugly head and changed everything.
Before Trikafta, my lung function was sitting in the mid-high 30's percentage wise. After Trikafta, my lung function went up to 48% and has been consistently in the mid 40's ever since! Stable lung function is a huge win!
My chronic cough that happened regularly (when I laughed, when I talked, when I slept, etc...), all but disappeared. Every now and then air quality, changing weather, or allergens will send me into a coughing fit, but I can't even describe how nice it is to be able to laugh at a funny joke knowing that I won't have to cough my lungs up because of it.
My weight quickly became stable as well. I didn't have to stress about eating as much food as possible. I now get to worry about things like my pants being too tight due to a few extra pounds put on over the holidays. That wasn't a thing before, and I'm so grateful to be dealing with things that everybody does.
My quality of life has increased significantly all due to 3 pills I now take every day. That is all because of people like you who donated to the Cystic Fibrosis Foundation. They are the ones who funded the research that led to Trikafta, and that was only possible because of you!
So, I continue to raise money for the foundation so that hopefully, one day, I won't have to anymore. One day, they will find a cure, and CF won't be a thing.
Together, we can make CF stand for CURE FOUND!
Please support me!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.