This is Johnston Graham. He turns 5 this month. He was diagnosed with CF days after he was born. He loves dinosaurs, pecan butter, riding his bike, and his BIG sister. CF isn’t who he is, but it dominates much of his daily life. We are coming up on the one year anniversary of Johnston’s first dose of Trikafta, which corrects the faulty protein created by his Fdel508 mutation. While we are grateful that he is responding well, and his life expectancy will be greatly extended, it is not a cure! And there are others with CF who don’t benefit from current treatments. Nearly every CF drug available was made possible through the Cystic Fibrosis Foundations commitment to funding research and working with drug companies to find a cure! Will you help us fund this research into a cure for CF?
For too long,cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows –progressively limiting their ability to breathe and tragically shortening life.There are approximately 30,000 Americans living with CF. They are moms, dads,sisters, brothers, daughters, sons, friends, and co-workers who struggle everyday in the face of this devasting disease.
I walk forthem. Will you join me and support my Great Strides fundraising goal?
Real progresshas been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation’spursuit of new therapies and provide vital support to meet the needs of the CFcommunity.
Please support me!
Your participation will help us get one step closer to ending this terrible disease.Let’s make CF stand for Cure Found.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.