Please join us in our fight against Cystic Fibrosis!
Cycstic Fibrosis is a life-shortening genetic disease that effects 70,000 people worldwide. Our Lola has Cystic Fibrosis. Every day for Lola begins and ends with lung physiotherapy. Each physiotherapy session includes multiple inhaled and nebulized medications. In between her physiotherapy sessions, Lola consumes over 30 additional pills, powders, and supplements daily. In the past year Lola has had three hospitalizations. She does all of this to maintain status-quo. There are no days off and there is no end in sight. We're fighting for a cure and we need your support.
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The Foundation's focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF and - ultimately - to find a cure. Thanks in large part to the Foundation's efforts, people with cystic fibrosis are living into their 40s - leading longer, healthier lives and pursuing dreams they never before thought possible.
We are inviting you to join us on Saturday, April 25th in Griffith Park to walk with team Lola Palooza in support of the Cystic Fibrosis Foundation. Registration for the walk is free, however, donations are welcome.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.