Our Adi girl was diagnosed with Cystic Fibrosis shortly after birth. This came as a shock to our family as we weren’t aware we were carriers of this disease and had no known family history of CF. Although we’re terrified of the unknown, we do know that our girl is a fighter and everyday with her is a blessing. Adley is with a great team of specialists and being monitored closely at Children Hospital of Los Angeles. She is on daily medications, treatments and lung exercises to help her thrive!
Cystic Fibrosis is a rare, progressive, genetic disease that affects the lungs, pancreas, and other organs. Cystic Fibrosis is a life-threatening and life shortening disease. However, in recent years, there have been many breakthroughs that have greatly enhanced the expected quality of life, but the work is not done. There is currently no cure. With that being said, we formed a team to participate in a walk for Cystic Fibrosis, Adley would love for all family and friends to show up for her in any form that you’re comfortable! You can join physically, virtually or even just donate to help us reach out goal.
By joining us in this walk,
you have an opportunity to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.