2023 has already proven to us why we so badly need a cure for cystic fibrosis with a hospital admission in the first month. Every was hospitalization lasts at least two weeks and is not just physically, but emotionally draining. Each admission has restrictions that has meant no visitors, no leaving her room and no therapy puppies to come say hi. Saying it is hard is an absolute understatement and to top it off, we have added chronic pancreatitis to her CF ailments. This is incredibly painful and yet Audrey continues to smile through it all. She is such a true warrior and I am not exaggerating when I say she is a true hero.
Audrianna continues to be a CF warrior. After absorbing the diagnosis, we set out to fight this together with everything we have. However, we can't do this alone and are incredibly grateful to everyone for all of the support that has been provided through the Cystic Fibrosis Foundation. Recently, Audrey was able to start a new medication called Trikafta, which we could not be more excited about! The CF foundation helped make this possible. This medication is costly and not a cure, however. We will continue to raise money to find a cure, so there are more tomorrows for sweet Audrey!
As many of you know, CF is hard and Audrey has been left feeling broken by CF. We are incredibly grateful for all of the family, friends and the CF commuity for helping us to build our girl back up and fight along side her. Life has not been easy for Audrey, yet every day she continues to be a blessing for our family. She is a gift to our family and deserves to breathe without a struggle. As I questioned why life has been a difficult road for Audrianna, Chris reminded me that it's because she is destined for great things.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.