2020 was rough for all of us, but CF sure made it that much more difficult for sweet Audrey! She was hospitalized 4 separate times, 2 weeks every time. Each admission brought new Covid restrictions that meant no visitors, no leaving her room and no therapy puppies to come say hi. Saying it was hard is an absolute understatement and to top it off, we have added chronic pancreatitis to her CF ailments. This is incredibly painful and yet Audrey continues to smile through it all. She is such a true warrior and I am not exaggerating when I say she is a true hero.
Audrianna continues to be a CF warrior. After absorbing the diagnosis, Audrey and her family set out to fight this together with everything we have. However, we can't do this alone and are incredibly grateful to everyone for all of the support that has been provided through the Cystic Fibrosis Foundation. Recently, Audrey was able to start a new medication called Kalyedeco, which we could not be more excited about! The CF foundation helped make this possible. This medication is costly and not a cure, however. We will continue to raise money to find a cure, so there are more tomorrows for sweet Audrey!
As many of you know, this past year was a battle for Audrey. After a lengthy hospitalization during the holiday season, Audrey left feeling broken by CF. We are incredibly grateful for all of the family, friends and the CF commuity for helping us to build our girl back up and fight along side her. Life has not been easy for Audrey, yet every day she continues to be a blessing for our family. She is a gift to our family and deserves to breathe without a struggle. As I questioned why life has been a difficult road for Audrianna, Chris reminded me that it's because she is destined for great things.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.