What a year it’s been, and we’re feeling so hopeful and rejuvenated in our path to recovery beyond the pandemic. Every year our family participates in a Cystic Fibrosis walk to support our 10-year-old niece, Clare. While we took last year off, CF unfortunately cannot take a year off as it’s a daily struggle for so many!
Cystic Fibrosis is a life-threatening disease that affects the lungs & digestive system, with over 10 MILLION carriers of the genetic disease (including myself!). Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do.
Our daughter Lyla Gray is leading the family team this year, so sharing her note below…
Hi, my name is Lyla Gray. I'm 11 years old and my best friend and cousin is Claire, a 10 year old girl who is currently fighting CF. Clare has gone through so much and has been the bravest person I know for ten years. Every year my family does a walk to raise money for a cure, but since covid we have not been able to do it. But this year, we’re excited to do the walk and contribute to finding a cure for her. Clare is so caring, loving, and fun. She is always there when I need her, and I try to support her in any way. From facetimes, and distracting her when she gets blood drawn to cheer her up when she's sad. Overall, I would really appreciate it if you donate and support Clare.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.