It's been a minute, right?! Well, it's been two years to be exact. The pandemic was scary for all of us, but even more so for my nephew, Jacob, and all the others out there diagnosed with Cystic Fibrosis (which is about 30,000 Americans). Already battling a disease that affects the lungs, Covid could easily wreak havoc on someone with CF. For Jacob, he has had the advantage of being on a new drug, Trikafta, which has certainly changed his life for the better. When Covid hit our prayer was that Covid would not undo all the good that the new drug was doing in Jacob's body. So far, prayers have been answered!
However, something dawned on me during the pandemic. We got a small look into how it feels to live in fear of contracting a deadly virus. CF patients live with that fear their whole life. Contracting a simple cold or virus that everyone else is able to fight off easily can be deadly for a person with CF.
So, this is why we fight. This is why we continue to walk, to raise awareness, and to raise funds. We cannot stop fighting for those with CF. Jacob is lucky enough to be on a drug that is helping him combat this disease successfully. It doesn't cure it, but it makes a huge difference in his health. Others are not so fortunate because they do not have the same CF gene mutation.
Here's the thing - Jacob wouldn't have this drug without the efforts of literally thousands and thousands of people. They, and this includes those of you who have supported the CF walk over the years, are the reason these drugs have come to fruition. Fundraising efforts must continue so that more drugs can be discovered to help manage the disease for ALL people who have CF. In actuality, our efforts must continue until a cure is found.
Please consider making a donation OF ANY AMOUNT to help us make CF stand for CURE FOUND!!
Thank you! The Malchus Family
(Budd, Karyn, Max, Zach and Megan)