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Achievements:

Karyn Malchus

Event: Santa Clarita

| Team: Jacob's Heroes

Karyn's Fundraising Goal: $500.00

| Amount Raised: $505.00

100%

My Great Strides Story

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Hi Everyone!

It's been a minute, right?! Well, it's been two years to be exact. The pandemic was scary for all of us, but even more so for my nephew, Jacob, and all the others out there diagnosed with Cystic Fibrosis (which is about 30,000 Americans). Already battling a disease that affects the lungs, Covid could easily wreak havoc on someone with CF. For Jacob, he has had the advantage of being on a new drug, Trikafta, which has certainly changed his life for the better. When Covid hit our prayer was that Covid would not undo all the good that the new drug was doing in Jacob's body. So far, prayers have been answered!

However, something dawned on me during the pandemic. We got a small look into how it feels to live in fear of contracting a deadly virus. CF patients live with that fear their whole life. Contracting a simple cold or virus that everyone else is able to fight off easily can be deadly for a person with CF.

So, this is why we fight. This is why we continue to walk, to raise awareness, and to raise funds. We cannot stop fighting for those with CF. Jacob is lucky enough to be on a drug that is helping him combat this disease successfully. It doesn't cure it, but it makes a huge difference in his health. Others are not so fortunate because they do not have the same CF gene mutation.

Here's the thing - Jacob wouldn't have this drug without the efforts of literally thousands and thousands of people. They, and this includes those of you who have supported the CF walk over the years, are the reason these drugs have come to fruition. Fundraising efforts must continue so that more drugs can be discovered to help manage the disease for ALL people who have CF. In actuality, our efforts must continue until a cure is found.

Please consider making a donation OF ANY AMOUNT to help us make CF stand for CURE FOUND!!

Thank you! The Malchus Family
(Budd, Karyn, Max, Zach and Megan)

Achievements

T-Shirt

Raised the amount of money defined for this milestone

Personal Progress:

of Goal

$505 Raised

$500.00

Fundraising Honor Roll

Facebook Fundraiser

$150

Facebook Fundraiser

$100

Rebecca Johnston

$100

Facebook Fundraiser

$70

Facebook Fundraiser

$55

Facebook Fundraiser

$30

IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:

To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.

To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:

Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.

FOR YOUR SAFETY AND THE SAFETY OF OTHERS:

For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.

Achievements:

Karyn Malchus

My Great Strides Story

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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:

To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.

FOR YOUR SAFETY AND THE SAFETY OF OTHERS:

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