Hi, my name is Thalía and I’m mother to the raddest kid on this planet AMORÁ a.k.a Titi guuurl. You only have to meet her once to really experience how special she is!! Today we bring awareness not just for her but for everyone living with CF. Amorá falls in the 10% group, she was born with two rare mutations. Our fight isn’t over, Thank you so much for spreading awareness and for all your donations. It’s means everything to me, she is my world! Thank you thank you!
Xo
My Great Strides Story
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.