Devin Ruiz

In 2019 Pia's Posse was formed when my newborn daughter Pia was diagnosed with cystic fibrosis at 9 days old. A month after she was born we learned that it was Cystic Fibrosis awareness month and a group of family and friend's across the world educated themselves on cystic fibrosis and helped advocate for Pia and others around the globe who suffer from CF.

So what is cystic fibrosis? It is an ingredient that is passed on when both parents carry a mutation and give it to any of their offspring. There are 1700 mutations that can be passed on to carriers of CF luckily my daughter has the most common mutation, DF508. This means that she has more medicines and trials available for her. My first daughter did not have CF and we did not learn we were carriers until little Pia was 9 days old. 

Her days consist of dancing, hugs, kisses, playing, and tons of curiosity about this beautiful world that she is a part of. They also consist of taking medicines with every meal in order for her pancreas to help with the absorption of nutrients, she has to eat extra salt with all her meals because her sweat excretes 3 – 4 times more salt, she also needs to have two vest treatments daily to make sure that mucus does not clog up her passages. Pia has it much easier than others who are diagnosed with CF.

Pia is a bundle of love who so happens to live with CF and we want to bring education about what CF is and to help the many people who have it.

Finding a cure for Cystic Fibrosis is now close to becoming a reality. It is that time of year again to help us raise money for Pia and Great Strides CF Foundation. With your contribution doctors and scientist from around the globe are able to take their studies to the next level. In October 2019 we got the beautiful news of a breakthrough 3-part drug called Trikafta which help my kid live a long healthy life and your donations are literally saving lives!! We are not at the finish line yet, help us get there and let’s end this disease.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.